I am now a mother to five amazing and beautiful children, one of which is a baby girl born on Leap day, 2012! She passed away on March 22, 2012 and lived for only 23 days. She had a rare form of dwarfism, Campomelic Dysplasia. This website is for us to share our story. She is a miracle from God and I am blessed to have been chosen to be her mother.
Monday, March 5, 2012
This video was taken when Abby was taken off of her breathing tube and before her CPAP. A small window of time without any gadgets!!
Look at her go at her paci! Atta girl! Thats one thing Braden could never do with the breathing tube (nor did he want to after it was out and he was trached!) Prayers headed your way for good results tomorrow!
Hi! I'm from the yahoo group. Congratulations! Your daughter is beautiful and I was emotional! I also have a daughter with CD. I made a blog for her too.
Look at her go at her paci! Atta girl! Thats one thing Braden could never do with the breathing tube (nor did he want to after it was out and he was trached!) Prayers headed your way for good results tomorrow!
ReplyDeleteHi Amanda! She absolutely loves her binky. She can suck pretty hard on that thing! LOL
DeleteHi!
ReplyDeleteI'm from the yahoo group.
Congratulations! Your daughter is beautiful and I was emotional!
I also have a daughter with CD. I made a blog for her too.
God bless you.
Priscilla
Hi Priscilla! It is nice to meet you! What is your blog? I would love to check it out if you don't mind. How old is your daughter?
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