I am now a mother to five amazing and beautiful children, one of which is a baby girl born on Leap day, 2012! She passed away on March 22, 2012 and lived for only 23 days. She had a rare form of dwarfism, Campomelic Dysplasia. This website is for us to share our story. She is a miracle from God and I am blessed to have been chosen to be her mother.
Friday, April 27, 2012
A Tribute to Abby
I want to share a video that I created of Abby that depicts her short but sweet little life. It was very difficult to create this, but I am so pleased with it. I hope you all enjoy.
You nust need prayer tonight. Randomly thought of you and Abigail. I saw this video and it brought tears to my eyes, an ache in my heart and an appreciation for life. God Bless. - Erin Kelley
Aimee I am so sorry for your families loss and was touched very deeply by your posts - thank you so much for doing them. My husband and I just found out that our baby also has the same campomelic dysplasia as Abby and we are doing our best to research and be completely prepared for the road ahead of us but we would love to talk with you & your husband if that is possible. We are completely lost and every place we turn sends us somewhere else because they have no information on this disease. My husband and I really thought it would help us to find someone to talk to who has been through this before and you are the first and only person so far I have found - so I hope I can reach you and maybe contact back and forth if you are up to it - I completely understand that this is very difficult to talk about let alone inform someone else but we really would love to be able to share in your joys, sorrows and wisdom please and thank you. If you are able to help us please my email is sshaf@hotmail.com (I really don't like to just put my email out there but I don't know any other way to get in touch with you so I hope this works and if not at least I know I tried whatever the consequences may be). thank you for your time and consideration my husband and I greatly appreciate whatever you can do for us! Sara
Dear Sara, I just emailed you a few moments earlier. If you like, I can delete your post once we connect if that would make you feel more comfortable. Let me know. Aimee
this is beautiful aimee, thank you for sharing! - carla
ReplyDeleteYou nust need prayer tonight. Randomly thought of you and Abigail. I saw this video and it brought tears to my eyes, an ache in my heart and an appreciation for life. God Bless. - Erin Kelley
ReplyDeleteAimee I am so sorry for your families loss and was touched very deeply by your posts - thank you so much for doing them. My husband and I just found out that our baby also has the same campomelic dysplasia as Abby and we are doing our best to research and be completely prepared for the road ahead of us but we would love to talk with you & your husband if that is possible. We are completely lost and every place we turn sends us somewhere else because they have no information on this disease. My husband and I really thought it would help us to find someone to talk to who has been through this before and you are the first and only person so far I have found - so I hope I can reach you and maybe contact back and forth if you are up to it - I completely understand that this is very difficult to talk about let alone inform someone else but we really would love to be able to share in your joys, sorrows and wisdom please and thank you. If you are able to help us please my email is sshaf@hotmail.com (I really don't like to just put my email out there but I don't know any other way to get in touch with you so I hope this works and if not at least I know I tried whatever the consequences may be). thank you for your time and consideration my husband and I greatly appreciate whatever you can do for us!
ReplyDeleteSara
Dear Sara,
DeleteI just emailed you a few moments earlier. If you like, I can delete your post once we connect if that would make you feel more comfortable. Let me know.
Aimee